Monday, May 28, 2007

The Ethics of Medical Research


There is probably a rule (unwritten or otherwise) somewhere that says you are probably best not to blog about things about which you have no knowledge or experience. Come to think of it, there probably isn't, so on we go.

Driving home last week I was listening to some news coverage of some ruling on the creation of hybrid embryos as a mix of human and animal genes. As ever with these things, the scientists say "This is an essential part of our work" and the morality wing say "Oh the horror! Have you seen the fly?". I find it easy to sympathise with both sides of the argument. It simply doesn't sound right to go gene-splicing about the place willy-nilly creating odd beasts for the sake of progress and similarly you could say "but hey, if it improves lives, saves lives, no one gets hurt, go for it."

This all stems for the seemingly unquenchable need for us, as humans, to progress, to make things better. It has always been this way. No one would say that what Burke and Hare did (in the city in which I currently type) was in any way justified (morally or otherwise) but yet medical research benefited from it. But it is too easy to make these kind of comparisons. It doesn't feel valid to me. I'll leave it to others more qualified than I to debate the point at which life exists etc but to my simple mind, mature, controlled research at a cellular level doesn't strike me as barbaric or immoral in any way. That's not to say that there aren't risks and this kind of thing needs to be done under tight legislative control.

There is one fundamental question in all of this that I never hear asked, never mind get answered. We have, over a number of years, progressed a massive amount in medical science. People live longer, healthier lives in general surviving things that would have wiped out those in recent generations. Trouble is, we've probably done all the easy stuff. That's why things seem to be progressing to a smaller scale, genetic level. (if I can offer a horrible analogy, like physics going from dynamics, to atomic, to sub-atomic level).

The question is, if people are going to object to this new kind of research being done, are they prepared to stand up and say "That's it, we're going no further, all of you with diseases x, y and condition z, we're doing nothing for you because we don't like the path it takes us down on moral grounds"?

Because the truth, as I understand it, is that there are a whole number of conditions that we can do very little about unless we start to get very clever with genetic therapies etc. If we are happy that we have taken life expectancy and survivability as far as we'd like then fine. Kill the research and buy the poor sods we are ignoring some nice flowers.

But that's never an angle I hear. Its always the "Oh the humanity!" Burke and Hare reaction and questions answered with phrases with things like "but that's not the point".

I simply cannot conceive of or believe in a future where the human race stops trying to make things better. There cannot be a plateau that can be reached at which point we will ever say "that'll do eh? pint anyone?" Therefore I would encourage the "anti" lobby to continue to campaign but to do it in a way that accepts that progress is inevitable and that all such research should be carried out properly, openly and in a controlled and legislated manner.

Its very easy to envisage a future dystopia from these type of proposals but it is even easier to witness the dystopian existence of people living now. I doubt anyone campaigning today could look into the eyes of any of these people and say that they didn't want to help.

What seems to be missing is trust. How we get that though is probably a far more difficult question.

Normal trite nonsense service will be resumed shortly...

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Thursday, May 24, 2007

Photo Usage


In the easy content style of a cheap clip show, some more web photo usage:

Website of the day:
Mmm...tricky one, too busy today to get near the web, but I'll go for PhotoBox, got a photo book from there today, can't praise the quality high enough, the recipient was very pleased. And the UI to design the books ain't bad either...

Track of the day:
Once again, the randomiser not on top form tonight, but you can ignore the all-round loveliness of Cherry Coloured Funk

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Answers on a postcard


As you get older, although you are aware of your gradual change in appearance, I'm not sure if you ever stop looking outside from behind your eyes with younger eyes. There comes a point, unbeknownst to you, when other people look at you at start to thing, there's a fat/old/grey/bald guy.

Recently, I was doing a portrait shoot and I sat in front of the camera and let my daughter click the button. I ended up with this picture:




Now, I thought this was a reasonable picture, but, quite rightly, others saw it with less biased eyes and have had a number of amusing reactions. In no particular order, I am:

Says it all when you are happy with looking like Grant Stott.

So, lets keep up coming, more unflattering comparisons please, I need to get used to it, this is as good as its gonna get!

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Monday, May 21, 2007

Searching for inspiration


A while back now I got tired of hitting F5 all the time so decided to build a simple internet Automatic Page Refresher. It worked a treat. I stuck it on my website and it got used so much that I got attacked a lot and had to shut it down. That was when I moved it to LazyWebTools. It still get used a lot mainly, I think, by people refreshing Gaia (whatever that is) but I've also sold the occassional offline copy for people like TV newsrooms and insurance brokers. It still rattles along with lots of hits every day, but I'm bored with it now, so I don't keep trying the promotion thing, so it makes, last time I looked, about $0.03 a day!

Its been updated a bit over time, I had to change the minimum refresh time to stop it being used for DoS attacks and I added the Automatic Page Cycler, which is far superior, but gets used less.

I'd like to think there wasn't a simpler way of refreshing internet pages automatically for free, its not like its hard.

Since then, I've been a bit out of inspiration for more tools. I built a really simple Times Tables Tutor to teach kids multiplication tables, which works really well, but hasn't taken off. Inspired by a TC idea I built CheckMyRequest, but it didn't fly liked I'd hoped, daft as it is. It should be popular, we all get asked to do daft things every day, its perfect sorting people out in a humourous way.

So, I need to think of a new tool, if you have any ideas, let me know.

Website of the Day:
Given the subject of the post it has to be the mediocrity of LazyWebTools, roll up, roll up, get your automatic page refresher here.*

Track of the day:
Well, you can all see what I've been listening to thanks to my new last.fm gadgets, but it seems to timeout the tracks quite quickly. The randomiser was mostly awful tonight, but I'll go for 'All we ever wanted' by Bauhaus.

* Did you see what I did there?

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Sunday, May 20, 2007

Disappointment - The FA Cup Final 2007


I'm not going to drivel on in a boring way about football. It's just not a bloggy type thing. But really, could the FA Cup Final have been any worse? Obviously, if I was a Chelsea fan I wouldn't give two hoots (although I do remember how bad 1999 was really, despite the end).
But as a Man Utd fan (yes, I know I'll be encouraging daft comments with this, but lets just clear this up now, I was in the Stretford end as a foetus in 1969, I don't care if I'm Scottish and live in Edinburgh, I was born in Manchester, I'm proper Red, right? My name is even on the pavement outside the ground. Gottit? good. ).
So, as I was saying, as a Man Utd fan is was not only the most boring game imaginable, it was so against everything you'd expect them to be. We had won the league, done the hard bit, we should have played with freedom. But we didn't. We played not to lose in the hope that something would magical happen. That's no way to do it.
Neither team really looked like a decent team until they brought on another striker and by then the game was far to nervy to have much shape.
We should have gone at them from the start, if they had scored a goal early, so what, it would have clarified what we had to do. Make no mistake, hanging on for penalties wasn't good for us. We would have lost on penalties. Don't ask me how I know, we would have. Sir Alex knew that, he said as much before the game. So why all the caution? I honestly have no idea.

My point is this, you don't get anything without being prepared to take a degree of risk. You have to set out to win. There is a lesson there for many things I'm sure.

I'm not denying that Chelsea are very hard to break down but a bit of pace and movement and Scholes would have picked the passes and won us the game. Instead we played to avoid losing. Which was a real disappointment. I'm not as disappointed at losing as I am at the way we lost.
I've been watching United since I was very small. I can tell when its going to be a good day and I knew early on that we weren't playing at the right tempo. I'd love to see this stat, in the games were Utd get a corner in the first 5 minutes, how many do they lose? I bet its not many.
One good thing, it was great to see the coverage before the game showing Norman Whiteside's goal that won the 1985 cup. I was 15 and remember standing on the coffee table near to tears screaming when it went in. Shame it wasn't like that yesterday. Although, obviously, if I had a coffee table it would doubtless be in bits if it had happened, I'm not the skelf I once was.

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Thursday, May 03, 2007

The Last of the True Disbelievers


As I type some music is arriving in my house. It is the rather splendid 1985 mini-album by
The Brilliant Corners, Growing Up Absurd. Not available on CD, I got it from EBay on vinyl and, being far too lazy to do it myself, Stuart* borrowed my USB turntable and he has MP3'd it for me and is currently uploading it to my server behind the TV.

In the age we live in, this is perhaps not happening in every living room in the land**, but isn't exactly remarkable. Its not like we built the bits ourselves. We bought it from t'Internet.

Thing is, this still has an element of wonder to it. Sure, I'm a technology kinda guy, I understand it, its not magic, but if you'd asked me when I was 12, playing vinyl on the all-in-one Waltham Music Centre (with built-in digital clock no less) if this kind of thing would ever be likely, I might have been a bit amazed.

I think I was lucky in that I caught the very end of the innocent times, I can track the rise of true technology with my passing years.
  • Black and white TV, 3 channels
  • Colour TV, with a remote! (with one BIG button)
  • Channel 4/Teletext
  • VHS
  • and so on...

And then, of course, the mighty ZX81. If you want trace back the rise of my own personal Skynet, it starts at Christmas 1981.

10 PRINT "SCOTT"
20 GOTO 10

Wow.

Wow? Wow is the word. What makes you go wow? The point, which I am sluggishly and with no small amount of wine involved getting to, is that much of the wow has gone out of the world because a the glass ceiling of wow has been broken. Kids today just see the next thing to come along as evolution not revolution. You don't get "Wow" you get "well, duh!". The baseline has moved so much that the asymptote of wonder has been reached. We will never stop progressing, never stop seeing new things, but we are now so close the to top of the wonder-curve that nothing will be remarkable ever again.

If you tell a kid of today that you said "the graphics are amazing" when talking about Sabrewulf on the Spectrum or that the speech used in Impossible Mission in the C64 was "astounding", you simply get laughed at. But at the time, they brought with them a "wow", an amount of disbelief from which comes wonder.

I'm happy to have been one of the last of the true disbelievers***. I'm as happy as I am equally miffed that I bet there is a lot of really cool stuff that will happen after I'm dead that I'll never see and that frankly, when it arrives, no one will be all that surprised about.

Website of the Day:
All hail the real
wow!

Track of the Day:
Well, it has to be the newly arrived Mary by The Brilliant Corners which is on "growing Up Absurd" available on a server under my TV.

* - the notable freelance writer and sci-fi critic, come on Wikipedia, get the finger out
** - some people have lives, apparently, dim-witted loons
*** - credit must go to the mighty Ciaran and song "Last of the True Believers" by That Petrol Emotion

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